Family. Lifestyle. Fashion.
We’re in the depths of moving here at my house. I’m scrambling to comb through every nook and cranny. I’m a whirlwind of sorting: purging left and right. “Sell this, donate that, throw this out.” And on the craziness continues.
The move doesn’t seem real yet, even with all the drastic downsizing. I don’t think it’s really hit me yet that I’m leaving the house I call home. I’m packing up our belonging and with them our memories. This is the house that taught me so much. This is the house that witnessed our successes and our failures. The walls bare witness to our laughs and our tears. This is the house where I became a wife. This is the house I brought my first child back to. This is the house I call my home, and goodbyes are just not my thing. So, until I ninja across your squeaky floors one last time, I’ll just pretend you’re mine forever.
Like this post? Be sure to check out Fall 2016 Capsule Wardrobe!
Both my top and skirt will be making more appearances as they are both included in my summer capsule wardrobe! Make sure you check back in to see exactly what else my summer capsule wardrobe will include.
Touché, Karma, touché.
Another big part of your CF care is going to Clinic. I see a great team at Johns Hopkin’s Hospital every 2-3 months. Again, this is when I’m healthy. My visits could be as frequent as every 2 weeks when I’m sick. I went to clinic yesterday for my 3 month check-in. As soon as you enter the hospital, after getting your bright orange patient band, you don a blue mask. It’s critical for CF patients to mask up since the ‘bugs’ we culture in our lungs can be easily transferred to another CF patient. The less we culture the better we feel.
You get your weight checked, you do a breathing test called a PFT, or pulmonary function test, and then you get seen by a bunch of people. You come up with a plan based on how your lung function looks. I was at the hospital for 4 hours yesterday. Thankfully, my lungs look pretty good. My weight finally went up, and we have a great plan in place for when I move to Florida.
Then you grow your baby, surrendering your coffees, your drinks, your productivity and ankles. You start counting your time in weeks, then days, then hours and minutes. Finally, a little voice is brought into the world and you continue on your journey with hopes and dreams and sacrifices.
Rocking, shushing, snuggling, swaddling, feeding, wiping away tears and wiping bums. Choking back tears to soothe a terrified face at the doctors. A heart so full it might burst. Late night cries and early morning giggles. The terrifying doubts of being enough. Long days turning into short weeks, and snug clothes packed away. Your heart aches with hopes and dreams and sacrifices.
So cheers to you Moms, may you feel the love of your little one where ever they may be. May you find courage and strength to continue on, for without you we are nothing.
